<< Previous Section | < Previous Page | Next Page > | Next Section >> Bibliogrphy (page 1 of 10) Alpert, J. S., K. I. Shine, et al. (2004). "Task Force 1: The ACCF and AHA codes of conduct in human subjects research." Journal of the American College of Cardiology 44(8): 1724.       A set of guidelines for cardiologist-investigators regarding clinical research. Annas, G. J. (2005). "Family Privacy and Death -- Antigone, War, and Medical Research." N Engl J Med 352(5): 501-505.       The article examines the issue of family privacy and death through three distinct cases -- the ban on filming of US casualties in war, Vincent Foster's suicide photos, and Iceland's Health Sector Database. It is applicable to investigators in that it highlights the importance of patient privacy after death. The deceased patient's family rather than the investigator has the right of disclosure if the patient participated in a medical study; this fact makes consent forms and other pre-experiment contracts especially important for research participants. http://content.nejm.org/cgi/content/extract/352/5/501 Bates, B. R., J. A. Lynch, et al. (2005). "Warranted Concerns, Warranted Outlooks: A Focus Group Study Of Public Understandings Of Genetic Research." Social Science & Medicine 60(2): 331.       This paper does focus groups on public attitudes toward genetic research and its clinical consequences. It concludes that the public has a reasonable understanding of these in its own terms. http://www.sciencedirect.com/science/article/B6VBF-4CSYKDG-2/2/5fe206aeb8afd9dcff74ae19fec7ee9f Beckwith, J. (2001). "On the Social Responsibility of Scientists." Ann Ist Super Sanita. 37(2):189-94       The author deals with the social responsibility of genetic researchers using the discredited eugenics movement in the early 20th century as the model to show that destructive results can be due to scientific developments. Few geneticists are fully aware of the eugenics movement, which led to labeling some humans as genetically inferior. Many geneticists became proponents of eugenics between 1906 and 1915 (scholarly articles and textbook influences). This paper reviews the horrific history and allows us to project the future. It also goes into the ELSI process in the human genome project and the failures of communication between scientists and those involved in the humanities. Beecher, H. K. (1966). "Ethics and clinical research." Bulletin of the World Health Organization 79(4): 367-72.       This is one of the classics in the field of RCRH in that it points a finger at the unethical aspects of research as carried out at the time. Benditt, J., et al. (1995). "Conduct in science." Science 268(5218): 1705-18.       This is the introduction to a number of papers on the culture of science and the methods for teaching responsible conduct of research. The whole sequence should be required reading of teachers of RCR. Berry, R. S. (2003). "Validity and Ethics in Science." Science 300(5624): 1341-.       The author indicates that in science there are experiments and concepts that can be shown to be wrong by further research and experiments and concepts that are fraudulent, and known by their authors to be so from the beginning. In dealing with misconduct, science is proposed to distinguish between the two poorly, and that is unsatisfactory. http://www.sciencemag.org/cgi/content/summary/300/5624/1341 Bird, S. J. (1998). "The Role of Professional Societies: Codes of Conduct and Their Enforcement." Sci Eng Ethics 4(3): 315-320.       In discussions of professional standards and ethical values it is reasonable to consider who will develop the codes of conduct and guidelines for behavior that will reflect the standards and values of the community. Also worthy of consideration is whether the standards or guidelines are enforceable, and how and to what extent they will be enforced. The development of guidelines or professional codes of conduct is a responsibility that has been adopted by many professional societies. Useful to this discussion is an examination of the rationale behind the development of ethical codes by professional societies. The Ethics in Science Committee of the Council of Scientific Society Presidents (CSSP) has examined the codes of some of its member societies and some observations regarding them are pertinent. The nature and uses of ethical statements, codes and guidelines developed by professional societies are multiple and diverse. Their enforcement raises both practical and ethical concerns. << Previous Section | < Previous Page | Next Page > | Next Section >> Chapter 1 Quick Links The Ethical Basis of RCRH The Nature of Science Research Integrity Professionalism in Science Practical Elements of Responsible Research Conduct Cases Bibliography Chapter 1 Download (PDF)