<< Previous Section | < Previous Page | Next Page > | Next Section >> Bibliography (page 4 of 8) Foubister, V. (2000). Gene therapy group adopts stringent rules on financial ties. American Medical News: 10-11. Frankel, M. S. and A. R. Chapman (2001). "GENETIC TECHNOLOGIES: Facing Inheritable Genetic Modifications." Science 292(5520): 1303-.       This policy forum approaches the question of inherited genetic modification, not only to eliminate serious medical problems but proceeding into the realm of improving human beings, perhaps to produce distinctly superior humans. They point out that the fertility industry is not regulated at all and because of this socially unacceptable activity could be carried out without anyone even knowing about it. The propose that there be a policy discussion and regulation of these activities. Hall, S. S. (2002). "HUMAN CLONING: President's Bioethics Council Delivers." Science 297(5580): 322-324.       This news report details the stem cell report that proposed a ban on reproductive cloning and a four-year moratorium on research cloning. The sharp divisions within the Council made it possible for its proposals not to be enacted. It is a very good summary. Jones, S. (2000). Genetics in Medicine: Real Promises, Unreal Expectations, Milbank Memorial Fund.       This commissioned report based on meeting of those who purchase health care in the US and Gt. Britain raises doubt about the relevance of genetics as then understood to the delivery of health care. As the summary stated, "the new genetics is no more than another form of high-tech medicine of crucial importance to a few but irrelevant to the many. At present it suffers from too much publicity and too few results." I think that this article by very practical people is important reading and highly relevant to the changed situation as we see it today. Knoppers, B. and R. Chadwick (1994). "The Human Genome Project: Under and International Ethical Microscope." Science 265: 2035-5.       This very brief paper outlines the ethical issues associated with research and care in human genetics. Five principles, autonomy, privacy, justice, equity and quality are discussed, with appropriate references. These same principles operate to ensure ethical use of genetic materials today. Koerner, B. (2002). "Embryo Police." Wired February: 52-57.       This reportorial piece highlights HFEA, Britain's Human Fertilization and Embryology Authority, which is responsible for regulating what is permissible to do with reproductive tissues and monitoring the field. The author reviews all the kinds of research that could result in a variety of experiments, including those leading to human- other chimeras. The conclusion is that all nations will have to regulate reproductive science and practice intensely. Kulynych, J. K., David (2002). "Use and Disclosure of Health Information in Genetic Research: Weighin the Impact of the New Federal Medical Privacy Rule." American Journal of Law and Medicine 28(2, 3): 309-324.       This careful paper details the changes in definitions and outlines the rules associated with the HIPAA act, which had not been operationalized at that time. Lanza, R., J. Cibelli, et al. (2001). "The ethical reasons for stem cell research." Science 292(5520): 1299.       This letter to the editor supports stem cell research in the face of political opposition. They make three ethical points. 1) unregulated private organizations will supplant the government in doing this research without the appropriate controls and ethical guidelines 2) embryos will be destroyed in the same numbers 3) the negative viewpoint is limited to a small minority of Americans who shouldn't be allowed to dictate policy. << Previous Section | < Previous Page | Next Page > | Next Section >> Chapter 7 Quick Links Genetics and Stem Cell Research Genetics Human Embryonic Stem Cell Research Bibliography Chapter 7 Download (PDF)