»Questions & Answers«
»Case Study 1: Share and Share Alike?«
1: Why are data held in such a way that certain individuals working on a research study do not have access to personal information about the material? »Answer
2: What is a consent form? »Answer
3: What does it mean to have data anonymized? »Answer
4: Why shouldn’t Renee be able to use the samples, since she is not studying any disease associated with the blood samples? »Answer
5: What other options does Renee have besides ordering anonymous samples from a DNA bank? »Answer
»Case 1: Questions for Further Reflection«
1: Do you know the procedures involved in collecting data with human subjects? If not, how would you find out?
2: Why should we protect data collected from human subjects?
»Case Study 2: Who Owns Research Data? «
1: Who owns research data? »Answer
2: How could this problem of access to the research notebooks and manuals have been avoided? »Answer
3: Under what conditions should copying of data been done? »Answer
»Case 2: Questions for Further Reflection«
1: Are there ways in which you do not treat data as if it belonged to the academic institution, with the principal investigator as the steward?
2: Are the policies of data ownership clearly defined in research projects in which you are engaged?
Continue to the next section: → Annotated Case Studies